National Institutes of Health Clinical Center

Our People

Benjamin Berkman, JD, MPH

Benjamin Berkman, JD, MPH

Benjamin Berkman, J.D., M.P.H, is a faculty member in the NIH Department of Bioethics where he is the head of the section on the ethics of genetics and emerging technologies. He has a joint appointment in the National Human Genome Research Institute, where he serves as the Deputy Director of the NHGRI Bioethics Core. He was formerly the Deputy Director of the O’Neill Institute for National and Global Health Law at Georgetown Law (2007-2009), where he continues to serve as an Adjunct Professor. Mr. Berkman received a Bachelors Degree in the History of Science and Medicine at Harvard University (1999). He subsequently earned a Juris Doctor and a Masters in Public Health from the University of Michigan (2005).

As a faculty member in the Department of Bioethics, Mr. Berkman's research interests span a wide range of topics. His current work focuses on the legal and ethical issues associated with genomic research, genetic information privacy, and clinical adoption of new genetic and reproductive technologies.

Curriculum Vitae PDF Icon (213 KB)

Selected publications

Berkman BE. Refuting the Right Not to Know. Journal of Healthcare Law and Policy (in press).

Bayefsky M and Berkman BE. The Ethics of Allocating Uterine Transplants. Cambridge Quarterly of Healthcare Ethics (in press).

Gliwa C, Yurkiewicz I, Lehmann LS, Hull SC, Jones N, Berkman BE. IRB Perspectives on Obligations to Disclose Genetic Incidental Findings to Research Participants. Genetics in Medicine (in press).

Botkin JR, Belmont JW, Berg JS, Berkman BE, et al. Points to Consider: Ethical, Legal and Psychosocial Implications of Genetic Testing in Children and Adolescents. American Journal of Human Genetics 97(1): 6-21 (2015)

Grady CG, Eckstein L, Berkman BE, et al. Broad Consent for Research With Biological Samples: Workshop Conclusions. The American Journal of Bioethics 15(9): 34-42 (2015).

Berkman BE, Hull SC, Biesecker LG. Scrutinizing the Right Not To Know. American Journal of Bioethics 15(7): 17-19 (2015).

Bayefsky M, Berkman BE. FDA’s Proposed Guidance for Laboratory Developed Tests: How Should Regulators Balance the Risks and Promise of Innovation in Clinical Genetics? Food and Drug Law Policy Forum 5(2): 1-16 (2015).

Kim SK, Karlawish J, Berkman BE. Ethics of Genetic and Biomarker Test Disclosures in Neurodegenerative Disease Prevention Trials. Neurology 84: 1-7 (2015).

Mandava A, Millum J, Berkman BE. Incidental Findings of Misattributed Parentage. Hastings Center Report 45: 1-9 (2015).

Pike ER, Rothenberg K, Berkman BE. Finding Fault?: Exploring Legal Duties to Return Incidental Findings in Genomic Research. Georgetown Law Journal 102: 795-843 (2014).

Eckstein L, Garrett JR, Berkman BE. A Framework for Analyzing the Ethics of Disclosing Genetic Research Findings. Journal of Law, Medicine and Ethics 42(2): 190-207 (2014).

Berkman BE, Hull SC, Eckstein L. The Unintended Implication of Blurring the Line between Research and Clinical Care in a Genomic Age. Personalized Medicine 11(3): 285–295 (2014).

Hull SC and Berkman BE. Grappling with Genomic Incidental Findings in the Clinical Realm. Chest 145(2): 226-30 (2014).

Berkman BE and Hull SC. The "Right Not to Know" in the Genomic Era: Time to Break from Tradition? American Journal of Bioethics 14(3): 28-31 (2014).

Gliwa C, Berkman BE. Do researchers have an obligation to actively look for genetic incidental findings? American Journal of Bioethics 13(2): 32-42 (2013).

Abdul-Karim RBerkman BEWendler DRid AKhan JBadgett THull SC. Disclosure of incidental findings from next-generation sequencing in pediatric genomic research. Pediatrics; 31(3): 564-71 (2013).

Donley G, Hull SC, Berkman BE. Prenatal Whole Genome Sequencing: Just Because We Can, Should We?Hastings Center Report; 42(4): 28-40 (2012).

Prince A, Berkman BE. When Does Illness Begin: Genetic Discrimination and Disease Manifestation. Journal of Law, Medicine and Ethics; 40(3): 655-664 (2012).

Chan B, Facio F, Eidem H, Biesecker L, Hull SC, Berkman BE. Genomic inheritances: Disclosing individual research results from whole exome sequencing to deceased participants' relatives. American Journal of Bioethics; 12(10): 1-8 (2012).

NOTE: PDF documents require the free Adobe Reader.